Name Fragile X Syndrome
Related to/Also known as  see also Autism
Symptoms of Fragile X Syndrome

"[Fragile X] is the most common cause of inherited learning disability. It affects boys and girls and causes a wide range of problems with learning and behaviour, from mild to severe. Boys are usually more seriously affected than girls. FXS is caused by an alteration in a particular gene that lies on the X chromosome."

Source: St George's Healthcare NHS Trust
Link opens in new window www.southwestthamesgenetics.nhs.uk/patient_leaflets_Fragile%20X.pdf

Useful national contacts The Fragile X Society
Tel: 01371 875 100
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.
Website: Link opens in new window www.fragilex.org.uk
Helpline 0808 808 1111
Link opens in new window www.mencap.org.uk
Online resources What is Fragile X syndrome? (The National Autistic Society)
Link opens in new window www.autism.org.uk/about-autism/related-conditions/fragile-x-syndrome.aspx

Fragile X syndrome (Contact a Family)
Link opens in new window www.cafamily.org.uk/medical-information/conditions/f/fragile-x-syndrome/
Fragile X syndrome (Mencap)
Link opens in new window www.mencap.org.uk/about-learning-disability/about-learning-disability/learning-disability-and-other-conditions/fragile-x-syndrom

Our resources

Understanding Fragile X Syndrome The library at The Brain Charity has a range of resources on Fibromyalgia and on a wide range of disability-related issues.

Visit our library to read Understanding Fragile X Syndrome: A Guide for Families and Professionals by Isabel Fernández Carvajal. Or have a Link opens in new window look in your local library for this book.