By Nanette Mellor CEO

I’ve been learning about Mental Health this week to make sure the staff and volunteers here at The Brain Charity are all looked after properly (if I don’t look after them, they can’t look after you).

I went into the course thinking I knew virtually nothing about ‘Mental Health’, which always sounds a bit scary and complicated, but it turns out I knew a lot more than I thought I did. Why? Well, for a couple of reasons. Firstly my Auntie Sylvia, as well as having a learning disability, had schizophrenia too (I just thought of her as Auntie Sylvia. I didn’t really associate her with the big scary issue of ‘Mental Health’ and, despite her ‘episodes’, she was always my favourite auntie). Secondly, I have spent my whole career working for disabled people. As it turns out, lots of disabled people have mental health problems at one time or another (no doubt not only due to having to cope with the disability itself, but also due to the discrimination, the poverty, the lack of social support, the welfare benefit assessments… need I go on?)

Read More: Lost your Christmas spirit?

Olly, a young PhD researcher at Edge Hill University, is investigating the use of ‘digital legacies’ with people affected by MND. This is where people diagnosed with MND record video messages about their life and memories to pass on to children in their family. He would like to speak to people living with MND who are interested in recording a legacy for a child or young person in their family. He would also like to hear from 11-24 year-olds who use a digital legacy for emotional support whilst they provide care for a family member with the disease, and from young people who are bereaved.
For more information, please email This email address is being protected from spambots. You need JavaScript enabled to view it., or have a look at his research page www.facebook.com/mndlegacy

help digital legacies study

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Family Fund are the UK’s largest provider of grants to families on low incomes who are raising a disabled child or young person. In the last year they helped 72,043 families with a wide range of essential items, such as kitchen appliances, short breaks, clothing, sensory toys and computers - awarding a total of £33million in grants and services.

To request an application pack, either visit www.familyfund.org.uk or phone Family Fund on 01904 621115. Families can make an application once every 12 months up to a young person’s 18th birthday.

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