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I am writing hoping for some advice for my father. His doctor gave me your leaflet in hope you can help.
He has Corticobasal degeneration (CBD) is a rare condition that can cause gradually worsening problems with movement, speech, memory and swallowing. It's often also called corticobasal syndrome (CBS). CBD is caused by increasing numbers of brain cells becoming damaged or dying over time.
He is in full time employment at the moment, working for a Laboratory company called Alfred H Knights.
He has been sent for an assessment in Liverpool and had a risk assessment because he has had a few falls in work and cant keep his balance sometimes. The report came back that he was fit for work for the time being.
I would just like to know his options if he did decide to stop working and what his choices are.
Thank you for your enquiry. We are able to provide you with help and support, both on the condition itself and making sure that our father has the right support and also the consequences of being diagnosed with the condition. We have an Employment Adviser who can meet with you and your father to give advice and support. He can also speak over the telephone if that is better for you.
There is no effective treatment that slows the progression of
KBD. However, some of the symptoms can be
treated. Depending on the symptoms available, your doctor
• Levodopa to improve slow motion
• Drugs for controlling myoclonus
• Injection of botulinum toxin to reduce
stiffness in certain muscles of the arm or leg
• Other medicines for problematic urination, anxiety,
depression, cognitive problems, etc.
• Physiotherapy, professional reorientation, and / or
speech therapy to maintain function.
The cause of the onset of CBD is unknown. CBD
causes abnormal brain aging, which progresses with
over time. Healthy people have a protein in their brains,
called tau. It is of great importance for the normal functioning of neurons. However, people with CBD have
an abnormal tau protein that accumulates in the brain. He
damages neurons and other brain cells in certain
area. Researchers have not yet figured out why
this tau protein is abnormal in CBD. CBD is not hereditary
and the occurrence of and is not associated with exposure to certain factors
of the environment. There is no effective treatment that slows the progression of CBD. However, some of the symptoms can be treated with cannabis oil.