A
Name Ataxia
Related to/Also known as Cerebellar Ataxia
Symptoms of Ataxia

People with Ataxia have problems with co-ordination and balance.

Cerebellar Ataxias are a group of rare neurological disorders, many of which are inherited. There is large variation in the severity of the different types, and the rate of progression varies between individuals.

Types

Cerebellar Ataxias - often designated by numbers, see the information on the Ataxia website below.

Friedreich's Ataxia (FA/FRDA) - an inherited, progressive condition, which affects the nervous system.

Ataxia-Telangiectasia - A-T is a rare, degenerative, inherited disease which affects many parts of the body and causes severe disability.

Useful national contacts Ataxia UK
Link opens in new window www.ataxia.org.uk
Helpline: 0845 644 0606
Find your local support group:
Link opens in new window https://tinyurl.com/yanv3doj
• The Ataxia NW Support Group meets at The Brain Charity
A-T Society
Supports people living with ataxia-telangiectasia
Tel. 01582 760733
Link opens in new window www.atsociety.org.uk
Children & young people  Sibling care (Ataxia UK)
Advice for young people living with someone with ataxia
Link opens in new window www.ataxia.org.uk/news/sibling-care
Education and A-T (A-T Society)
The A-T Society can offer help and guidance to Education Professionals
Link opens in new window https://tinyurl.com/yyg2b4cn
Online resources

Ataxia (NHS Choices)
Link opens in new window https://tinyurl.com/y86rqab3


About Ataxia Telangiectasia (Action for A-T)
Link opens in new window https://actionforat.org/about-us/about-a-t

News and events

September 25th is Ataxia Awareness Day
Link opens in new window https://tinyurl.com/y3amh5nl

The 100,000 Genomes Project is looking for people with Ataxia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Our resources

Ataxia: A Parents' Guide The library at The Brain Charity has a range of resources on Ataxia and on a wide-range of disability related issues.

You can read our copies of Ataxia UK booklets, including "Ataxia: a Parent's Guide".