Name Cavernoma
Related to/Also known as Cavernous Angioma, Cavernous Haemangioma, or Cerebral Cavernous Malformation
Symptoms of Cavernoma
A cavernoma is a cluster of abnormal blood vessels in the brain or spinal cord. They are not cancerous and for many people they are asymptomatic (no symptoms). For those who do have symptoms they can include haemorrhages, seizures, headaches, tremor and other neurological deficits.
Useful national contacts Cavernoma Alliance UK (CAUK)
Tel: 01305 213 876
Link opens in new window www.cavernoma.org.uk
Children & young people CaverFamilies
CaverFamilies events and meetings are exclusively for young people who have, or have had, cavernoma; their parents and siblings.
Link opens in new window www.cavernoma.org.uk/caverfamilies
Online resources Cavernomas (NHS Choices website)
Link opens in new window https://tinyurl.com/y8ukvh98
Our resources Caverfamilies

The library at The Brain Charity has a range of resources on this condition and on a wide range of disability-related issues.

This includes a copy of the Cavernoma Alliance UK booklet "Caverfamilies: Talking about cavernoma with children".