C
Name Chiari malformation
Related to/Also known as Syringomyelia

Arnold-Chiari Malformation
Hindbrain Hernia
Chiari I, II, III
Spina bifida
Hydrocephalus

Symptoms of Chiari malformation

Syringomyelia is a disorder affecting the nervous system, where fluid-filled cavities develop inside the spinal cord. A variety of conditions lead to the formation of syringomyelia cavities. The most common factor is obstruction to the normal flow of CSF (cerebrospinal fluid within the spinal cord). Possible causes include Hindbrain Hernia, also referred to as Chiari Malformation, and spinal cord injury.

Symptoms vary, ranging from neck and arm pain, through to fairly severe disability, with muscle weakness and paralysis.

Types  
Useful national contacts

Ann Conroy Trust
Link opens in new window www.annconroytrust.org
Tel: 0300 111 0004
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Chiari Malformation Group: A space for you (Facebook group of the Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/y8mrr4bo

Children & young people

Has your child been diagnosed with Chiari? (Conquer Chiari, U.S. charity)
Link opens in new window https://tinyurl.com/y55y7y7b

Chiari I Malformation (For Parents) (KidsHealth)
Link opens in new window https://kidshealth.org/en/parents/chiari.html

News and events  
Online resources

Chiari malformation (Brain & Spine Foundation booklet)
Link opens in new window https://tinyurl.com/ydgocl32


Chiari malformation and syringomyelia (The Walton Centre)
Link opens in new window https://tinyurl.com/y34uw8ea

Arnold-Chiari malformation and driving (Gov.uk website)
Link opens in new window https://tinyurl.com/ya344pmn


Chiari Malformation (NHS Choices)
Link opens in new window https://tinyurl.com/yc9xsdch

Syringomyelia Fact Sheet (U.S. National Institute of Neurological Disorders and Stroke)
Link opens in new window https://tinyurl.com/yacac285


Syringomyelia (Contact A Family)
Link opens in new window https://tinyurl.com/y8aqg69g
Chiari malformations (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/c5gm7rk
Chiari malformation (Medline Plus website)
Link opens in new window http://tinyurl.com/ngd5www

Chiari Malformation Patient Information (The Walton Centre NHS Trust)
Link opens in new window https://tinyurl.com/yygoaenp


"Link opens in new window Chiari & Syringomyelia: A handbook for patients and their families", American Syringomyelia & Chiari Alliance Project (ASAP).

Our resources Jessica's Journey: One family's experience of chiari malformation in a child

The library at The Brain Charity has a range of  resources on Chiari Malformation and on a wide range of disability-related issues.

This includes the booklet "Jessica's Journey: One family's experience of chiari malformation in a child" by Kirsty Leigh.