| Name | Head Injury |
| see Brain Injury |
H
Headache
| Name | Headache |
| See Migraine, Cluster Headaches |
Hemiplegia
| Name | Hemiplegia |
| Related to/Also known as | Alternating hemiplegia Hemiplegic migraine |
| Symptoms of Hemiplegia |
Hemiplegia is a condition, the effects of which are similar to a stroke. It is caused by damage to the brain (most often before or around the time of birth) and it results in a varying degree of weakness and lack of control on one side of the body. In one child this may be very obvious (he or she may have little use of one hand, may limp or have poor balance); in another child it will be so slight that it only shows when attempting specific physical activities. Approximately half the children have additional diagnoses such as epilepsy, visual impairment or speech difficulties. Other challenges can include perceptual problems, specific learning difficulties or emotional and behavioural problems. |
| Types | |
| Useful national contacts | HemiHelp is now part of the charity 'Contact' Conttact's free helpline 0808 808 3555  https://tinyurl.com/up2jc6gEplilepsy Society www.epilepsysociety.org.ukhelpline: 01494 601 400 Stroke Association www.stroke.org.ukphone: 033 3033 100 |
| Children & young people |
Children and hemiplegia (Chartered Society of Physiotherapy) |
| News and events | |
| Online resources |
https://tinyurl.com/y72hnau2 |
| Our resources | The library at The Brain Charity has a range of resources on Hemiplegia and on a wide range of disability-related issues. |
Hereditary Spastic Paraplegia (H.S.P.)
| Name | Hereditary Spastic Paraplegia (HSP) |
| Related to/Also known as | Familial Spastic Paraplegia (FSP) |
| Symptoms of HSP |
A group of inherited disorders, which are characterised by progressive weakness and stiffness of the legs. |
| Types | |
| Useful national contacts | HSP Support Group Helpline: 01702 218184 www.hspgroup.org |
| Children & young people |
Familial Spastic Paraplegia (Contact, charity for families with disabled children) Hereditary Spastic Paraplegia (U.S. Child Neurology Foundation) |
| Online resources | Hereditary spastic paraplegia (NHS Choices) https://tinyurl.com/y7fexyyl |
| News and events | |
| Our resources |
The library at The Brain Charity has a range of resources on Hereditary Spastic Paraplegia (HSP) and on a wide range of disability-related issues. This includes a copy of the NHS Choices booklet "Hereditary Spastic Paraplegia" |
Hindbrain Hernia
| Name | Hindbrain Hernia |
| See: Chiari malformation |
Hughes Syndrome
| Name | Hughes Syndrome |
| See Antiphospholipid Syndrome |
Huntington's Disease (H.D.)
| Name | Huntington's Disease (HD) |
| Related to/Also known as | Huntington's Chorea (HC) |
| Symptoms of Huntington's Disease |
An hereditary, neurodegenerative disorder of the central nervous system, which causes emotional, intellectual and movement problems. The course of Huntington's is characterised by involuntary movement of the limbs, trunk, and face, progressive loss of mental abilities, and the development of psychiatric problems. Huntington's Disease usually appears in middle age (30-50 years), but can develop in younger and older people. |
| Types | Juvenile HD refers to anyone who develops symptoms of the disease before the age of 20. Those affected often experience more muscle rigidity than when developed in adulthood. |
| Useful national contacts | Huntington's Disease Association Suite 24 Liverpool Science Park Innovation Centre 1 131 Mount Pleasant Liverpool L3 5TF Tel. 0151 331 5444 www.hda.org.uk Find your local branch: http://hda.org.uk/hda/branchesEmail This email address is being protected from spambots. You need JavaScript enabled to view it. Scottish Huntington's Association www.hdscotland.org |
| Children & young people | For children and young people (Huntington's Disease Association) https://tinyurl.com/y3synlp4 |
| News and events | |
| Online resources |
COVID-19 information and advice (Huntingdon's Disease Association) Huntington's disease (NHS Choices) |
| Our resources | 
The library at The Brain Charity has a range of resources on Huntington's Disease and on a wide range of disability-related issues. Visit our library to read Learning to Live with Huntington's Disease: One Family's Story by Sandy Sulaiman. |
Hydrocephalus
| Name | Hydrocephalus |
| Related to/Also known as | Spina Bifida |
| Symptoms of Hydrocephalus |
Hydrocephalus is caused by a build up of cerebro-spinal fluid (CSF) in the ventricles of the brain. It can occur in association with Spina Bifida. Other causes include infections such as meningitis, premature birth, a head injury or a stroke. Hydrocephalus can lead to problems with skills such as concentration, short-term memory, organisation and co-ordination. |
| Types | |
| Useful national contacts | Shine (formerly ASBAH, the Association for Spina Bifida and Hydrocephalus) www.shinecharity.org.uk Helpline: 01733 555988 • Find support near you: https://tinyurl.com/yyyhwfye CSF Leak Association Charity working to raise the profile and support understanding of cerebrospinal fluid (CSF) leaks, and provides support to sufferers and carers. www.csfleak.info |
| Online resources |
Covid 19 (Coronavirus) - Information for Shine members Hydrocephalus (Contact, charity for families with disabled children) Spina bifida (Contact, charity for families with disabled children) https://tinyurl.com/yx9g3cw9Spina bifida (NHS Choices) https://tinyurl.com/yd9ehdfaHydrocephalus (NHS Choices) https://tinyurl.com/yahppdkd |
| Our resources |
The library at The Brain Charity has a range of resources on Hydrocephalus and on a wide range of disability-related issues.
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