Name Huntington's Disease (HD)
Related to/Also known as Huntington's Chorea (HC)
Symptoms of Huntington's Disease

An hereditary, neurodegenerative disorder of the central nervous system, which causes emotional, intellectual and movement problems. The course of Huntington's is characterised by involuntary movement of the limbs, trunk, and face, progressive loss of mental abilities, and the development of psychiatric problems.

Huntington's Disease usually appears in middle age (30-50 years), but can develop in younger and older people.

Types Juvenile HD refers to anyone who develops symptoms of the disease before the age of 20. Those affected often experience more muscle rigidity than when developed in adulthood.
Useful national contacts Huntington's Disease Association
Suite 24
Liverpool Science Park
Innovation Centre 1
131 Mount Pleasant
Liverpool L3 5TF
Tel. 0151 331 5444
Link opens in new window www.hda.org.uk
Find your local branch:
Link opens in new window http://hda.org.uk/hda/branches
Email This email address is being protected from spambots. You need JavaScript enabled to view it.
Scottish Huntington's Association
Link opens in new window www.hdscotland.org
Children & young people For children and young people (Huntington's Disease Association)
Link opens in new window https://tinyurl.com/y3synlp4
News and events  
Online resources

COVID-19 information and advice (Huntingdon's Disease Association)
Link opens in new window www.hda.org.uk/getting-help/covid-19-information-advice

Huntington's disease (NHS Choices)
Link opens in new window https://tinyurl.com/y8zc4z5q

Huntington's diease: A Quick Guide for South Asian Families (Huntingdon's Disease Association)
Link opens in new window www.hda.org.uk/media/1570/a-guide-for-south-asian-families.pdf

 Living with a condition (The Brain Charity)

Our resources Learning to live with Huntington's disease

The library at The Brain Charity has a range of resources on Huntington's Disease and on a wide range of disability-related issues.

Visit our library to read Learning to Live with Huntington's Disease: One Family's Story by Sandy Sulaiman.