Name Hydrocephalus
Related to/Also known as Spina Bifida
Symptoms of Hydrocephalus
Hydrocephalus is caused by a build up of cerebro-spinal fluid (CSF) in the ventricles of the brain. It can occur in association with Spina Bifida. Other causes include infections such as meningitis, premature birth, a head injury or a stroke. Hydrocephalus can lead to problems with skills such as concentration, short-term memory, organisation and co-ordination.
Useful national contacts Shine (formerly ASBAH, the Association for Spina Bifida and Hydrocephalus)
Link opens in new window www.shinecharity.org.uk
Helpline: 01733 555988
• Find support near you: https://tinyurl.com/yyyhwfye

CSF Leak Association
Charity working to raise the profile and support understanding of cerebrospinal fluid (CSF) leaks, and provides support to sufferers and carers.
Link opens in new window www.csfleak.info
News and Events  
Online resources

 The Brain Changer Arts Project (The Brain Charity)

Covid 19 (Coronavirus) - Information for Shine members
Link opens in new window www.shinecharity.org.uk/news/news/post/130-coronavirus-information-for-shine-members

Hydrocephalus (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/health-medical-information/conditions/h/hydrocephalus/?page=5&f=H

Spina bifida (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/health-medical-information/conditions/s/spina-bifida/?page=3&f=S 

Spina bifida (NHS Choices)
Link opens in new window https://tinyurl.com/yd9ehdfa

Hydrocephalus (NHS Choices)
Link opens in new window https://tinyurl.com/yahppdkd

 Living with a condition (The Brain Charity)

Our resources

The library at The Brain Charity has a range of resources on Hydrocephalus and on a wide range of disability-related issues.

Benny gets betterThis includes Shine's book for children about going to hospital "Benny gets bettter".