Name Idiopathic Intracranial Hypertension (IIH)
Related to/Also known as Benign Intracranial Hypertension (BIH)

Pseudotumor Cerebri (PTC)

Symptoms of I.I.H.

Idiopathic Intracranial Hypertension (I.I.H.) is a condition that is defined by increased intracranial pressure from increased blood flow to the blood vessels around the brain, but without the presence of tumour or disease. Often the sheath around the optic nerve (the nerve to the eyes) is swollen, which can cause sight problems and even blindness. 

It is also known as Pseudotumor Cerebri (PTC), because some sufferers present with signs and symptoms of a brain tumour despite no tumour being present ('pseudo' meaning false).

Useful national contacts IIH UK
Link opens in new window www.iih.org.uk

19 Woburn,
Tyne and Wear
NE38 7JX
Find support near you: https://tinyurl.com/y9pmj574


I Have IIH Foundation
Link opens in new window www.ihaveiih.com

Children & young people

IIH and children (IIH UK)
Link opens in new window www.iih.org.uk/iih-children

Blind Children UK
Link opens in new window www.blindchildrenuk.org
Support Line:  0800 781 1444
Email:  This email address is being protected from spambots. You need JavaScript enabled to view it.

Online resources IIH UK Patient Leaflet
Link opens in new window www.iih.org.uk/images/PatientLeaflet.pdf

IIH International Support Forum
Link opens in new window www.iihsupport.org/

Idiopathic Intercranial Hypertension (NHS Choices)
Link opens in new window https://tinyurl.com/yb95osc2

Our resources

The library at The Brain Charity has a range of resources on Idiopathic Intracranial Hypertension and on a wide range of disability-related issues.

Journal of Neurology, Neurosurgery and Psychiatry This includes a copy of the Journal of Neurology, Neurosurgery and Psychiatry article "Idiopathic Intracranial Hypertension: Consensus guidelines on management".