Name Idiopathic Intracranial Hypertension (IIH)
Related to/Also known as Benign Intracranial Hypertension (BIH)

Pseudotumor Cerebri (PTC)

Symptoms of I.I.H.

Idiopathic Intracranial Hypertension (I.I.H.) is a condition that is defined by increased intracranial pressure from increased blood flow to the blood vessels around the brain, but without the presence of tumour or disease. Often the sheath around the optic nerve (the nerve to the eyes) is swollen, which can cause sight problems and even blindness. 

It is also known as Pseudotumor Cerebri (PTC), because some sufferers present with signs and symptoms of a brain tumour despite no tumour being present ('pseudo' meaning false).

Useful national contacts IIH UK
Link opens in new window www.iih.org.uk

19 Woburn,
Tyne and Wear
NE38 7JX
Find support near you: https://tinyurl.com/y9pmj574

Children & young people

IIH and children (IIH UK)
Link opens in new window www.iih.org.uk/iih-children

Paedratric patient leaflet (IIH UK)
Link opens in new window https://tinyurl.com/y56jgxup

Online resources

Coronavirus disease (COVID-19) outbreak and what it means for IIH / IH sufferers (IIH Resourceful Facebook page)
Link opens in new window www.facebook.com/iihresourceful/posts/1823564037779678

IIH UK Patient Leaflet
Link opens in new window https://tinyurl.com/y5f72orl

Idiopathic Intercranial Hypertension (NHS Choices)
Link opens in new window https://tinyurl.com/yb95osc2

 Living with a condition (The Brain Charity)

Our resources

The library at The Brain Charity has a range of resources on Idiopathic Intracranial Hypertension and on a wide range of disability-related issues.

Journal of Neurology, Neurosurgery and Psychiatry This includes a copy of the Journal of Neurology, Neurosurgery and Psychiatry article "Idiopathic Intracranial Hypertension: Consensus guidelines on management".