M
Name Multiple Sclerosis (MS)
Related to/Also known as  
Symptoms of MS
Multiple Sclerosis is the most common disabling neurological disorder affecting young adults. MS occurs as the result of damage to myelin - the protective sheath surrounding nerve fibres of the central nervous system. This damage interferes with messages between the brain and other parts of the body.
Types
  • Relapsing remitting MS
  • Secondary progressive MS
  • Primary progressive MS
Useful national contacts MS Society
Helpline: 0808 800 8000
Link opens in new window www.mssociety.org.uk
Find your local support group:
Link opens in new window https://tinyurl.com/y8ksdy2j

Multiple Sclerosis Trust
Tel. 01462 476700
Freephone information service 0800 032 3839
Link opens in new window www.mstrust.org.uk


MS-UK
Tel. 0800 783 0518
Link opens in new window www.ms-uk.org
You can call the MS-UK Helpline for free on 0800 783 0518 during weekdays, between 9 a.m. and 5 p.m.


Multiple Sclerosis National Therapy Centres
There are more than 50 centres in Britain and Ireland, including the Neuro Therapy Centre in Cheshire.
Link opens in new window www.msntc.org.uk and
Link opens in new window www.neurotherapycentre.org

CSF Leak Association
Charity working to raise the profile and support understanding of cerebrospinal fluid (CSF) leaks, and provides support to sufferers and carers.
Link opens in new window www.csfleak.info

Online resources MS Trust: Newly diagnosed with Multiple Sclerosis
Link opens in new window https://tinyurl.com/ybow2j8r
Physiotherapy works: Multiple Sclerosis (MS) (Chartered Society of Physiotherapists factsheet)
Link opens in new window https://tinyurl.com/ya73x7n9

MS-UK Live Webchat
Link opens in new window www.ms-uk.org/livewebchat


NHS Choices: Multiple Sclerosis
Link opens in new window https://tinyurl.com/ybdgn4uq


NHS Videos: Being diagnosed with multiple sclerosis
Link opens in new window https://tinyurl.com/y7tqpqbv


BBC: What is multiple sclerosis?
Link opens in new window http://www.bbc.co.uk/newsbeat/18490516


MS-UK video 'We're here if you need us'
Link opens in new window www.youtube.com/watch?v=IWdXloSD8gs


MediKidz explain Multiple Sclerosis
Link opens in new window https://tinyurl.com/y7vaf85f


MS Research Treatment and Education charity
Link opens in new window www.ms-research.org.uk


MS Register
A ground-breaking study designed to increase our understanding of living with MS in the UK
Link opens in new window www.ukmsregister.org
News and events

Medicinal cannabis products to be legalised (BBC, July 26th 2018)
Link opens in new window www.bbc.co.uk/news/health-44968386

Government review says doctors should be able to prescribe cannabis for medicinal use (MS Society, July 20th, 2018)
Link opens in new window https://tinyurl.com/y86bnn2z

'Game changer' treatment for Multiple Sclerosis patients (BBC, March 2018)
Link opens in new window https://tinyurl.com/y79vp8ya

Emerging areas of research: Stem cells (MS Society)
Link opens in new window www.mssociety.org.uk/ms-research/emerging-areas/stem-cells

'Publication of ocrelizumab trials: hope for progressive MS' (MS Society, December 2016)
Link opens in new window https://tinyurl.com/yalrhh8n

MS treatment in England: is access still a lottery? (MS Society, October 2016)
Link opens in new window https://tinyurl.com/ycrqxgnj

 

'Reducing smoking following diagnosis could have a positive effect on the course of MS' (JAMA Neurology journal, October 2015)
Link opens in new window https://tinyurl.com/y9ba5j5w


Trajectories of Outcome in Neurological Conditions (TONiC) study seeks volunteers
Link opens in new window https://tonic.thewaltoncentre.nhs.uk


People with multiple sclerosis say the benefits system is harming their health
MS Society, September 2015
Link opens in new window tinyurl.com/ogmh3r4


"Time matters in multiple sclerosis" MS Society, September 2015 Link opens in new window
tinyurl.com/qzdz7wn

Our resources

Managing your Multiple Sclerosis The library at The Brain Charity has a range of resources on MS and on a wide range of disability-related issues.

Visit our library to read Managing your Multiple Sclerosis: Practical advice to help you manage your multiple sclerosis by Professor Ian Robinson and Dr Frank Clifford Rose, and you can watch our copy of the MS Society's DVD for children Annie & Dan talk about MS.
Or have a Link opens in new window look in your local library for Professor Robson's book.
Find this in a library at WorldCat.org