Name Myalgic Encephalomyelitis (ME)
Related to/Also known as Chronic Fatigue Syndrome (CFS)

Post-Viral Fatigue Syndrome (PVFS)
Long Covid

Symptoms of M.E.

M.E. is a potentially chronic and disabling neurological disorder, which is characterised by persistent fatigue and muscle pain. Symptoms can include cognitive problems such as loss of memory and concentration, recurrent sore throat and enlarged neck glands, disturbed sleep patterns and persistent headaches.

• The British Deaf Association has information in BSL about M.E.

Useful national contacts ACTION for M.E.
Telephone support: 0845 123 2314
Membership/general 0845 123 2380, 9am-5pm
Link opens in new window www.actionforme.org.uk
Find your local support group:
Link opens in new window www.actionforme.org.uk/get-support-now/find-local-support/local-me-support-groups

M.E. Association
Helpline: 0844 576 5326 (open every day 10am-12noon, 2-4pm, 7-9pm)
Link opens in new window www.meassociation.org.uk

Children & young people

Children and young people with M.E./CFS (Action for ME)
Link opens in new window www.actionforme.org.uk/children-and-young-people/introduction

'Landmark chronic fatigue trial could treat two-thirds of children with chronic fatigue syndrome' (BBC website, November 2016)
Link opens in new window www.bbc.co.uk/news/health-3782206

Online resources

M.E. and Covid-19 vaccine: your questions (Action for ME)

Coronavirus and M.E./CFS(Action for M.E)
Link opens in new window www.actionforme.org.uk/get-support-now/coronavirus-and-me-cfs/me-and-coronavirus

Coronavirus warning as victims staying sick for MONTHS with ‘post-Covid syndrome’ (ME Association, July 2020)
Link opens in new window https://meassociation.org.uk/2020/07/coronavirus-warning-as-victims-staying-sick-for-months-with-post-covid-syndrome

Your benefits during the coronavirus crisis (ME Association)
Link opens in new window www.meassociation.org.uk/wp-content/uploads/MEA-Coronavirus-MECFS-and-Benefits-24.04.20.pdf


Chronic fatigue syndrome (NHS Choices)
Link opens in new window https://tinyurl.com/yblzrncb

 Living with a condition (The Brain Charity)
News and event  
Our resources

Living with M.E.: The Chronic/Post-Viral Fatigue SyndromeThe library at The Brain Charity has a range of resources on M.E. and on a wide range of disability-related issues.

Visit our library to read Living with M.E: The chronic/post-viral fatigue syndrome by Dr Charles Shepherd. Or have a Link opens in new window look in your local library for this book.
Find this in a library at WorldCat.org