Name | PTSD (Post-Traumatic Stress Disorder) |
See: Post-traumatic stress disorder (PTSD) |
Name | PTSD (Post-Traumatic Stress Disorder) |
See: Post-traumatic stress disorder (PTSD) |
Name | Pain |
Related to/Also known as | see also Back Pain |
Symptoms | Pain is a common feature of many neurological conditions. Learning to cope with pain can help individuals to take control of their conditions. |
Types | |
Useful national contacts | Action on Pain ![]() Pain Concern Pain Relief Foundation BackCare Orofacial Pain ![]() CSF Leak Association |
Children & young people | A new guide to helping children understand chronic pain ![]() Families and children (Pain Concern) ![]() Chronic pain (Great Ormond Street Hospital) ![]() Why Do I Have Pain? (KidsHealth) https://kidshealth.org/en/kids/pain.html |
News and events |
Volunteer for pain research (University of Manchester) ![]() |
Online resources |
Pain Management in Lockdown (Pain Concern) Painkillers 'mask, not kill' long-term pain (BBC, February 2020) How to get NHS help for your pain (NHS Choices) Physiotherapy works: Chronic pain (Chartered Society of Physiotherapy factsheet) People living with Pain (British Pain Society) |
Our resources | ![]() The library at The Brain Charity has a range of resources on Pain and on a wide range of disability-related issues. This includes a copy of the book 0 days off by Edward Stevenson, about his struggle with chronic pain. |
Name | PANDAS (Paediatric Autoimmune Neuropyschiatratric Disorders with Streptococcal Infections) |
See PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) |
Name | PANS (Paediatric Acute-onset Neuropsychiatric Syndrome) |
Related to/Also known as | |
Symptoms of PANS and PANDAS |
Source: PANS PANDAS UK www.panspandasuk.org/pans-pandas
Source: PANS PANDAS UK www.panspandasuk.org/pans-pandas
Source: Contact, charity for families with disabled children https://contact.org.uk/advice-and-support/health-medical-information/conditions/s/sydenham-chorea/?page=5&f=S |
Useful national contacts |
PANS PANDAS UK Contact, charity for families with disabled children |
Online resources |
Pediatric acute-onset neuropsychiatric syndrome (U.S. Genetic and Rare Diseases Information Center) Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) Care (Stanford Hospital, U.S.) Pediatric autoimmune neuropsychiatric disorders associated with Streptococcus infections (U.S. Genetic and Rare Diseases Information Center) Sydenham Chorea (U.S. National Organization for Rare Disorders) Sydenham Chorea (Contact, charity for families with disabled children) |
News and events |
"These children were told they have autism and mental health problems but the cause was a bug – and ‘thousands’ like them are being misdiagnosed" (iNews, September 2018) |
Our resources |
The library at the Brain Charity has a range of resources on a wide range of disability related issues. |
Name | Parkinson's |
Related to/Also known as | Idiopathic Parkinson's Disease |
Symptoms of Parkinson's |
A progressive neurological condition, which can affect talking, walking, swallowing, writing etc. Characterised by slowness in the initiation and performance of movement, and sometimes tremor, usually at rest. • The British Deaf Association has information in BSL about Parkinson's. |
Types | |
Useful national contacts |
Parkinson's UK Dance for Parkinson's Network UK |
Children & young people |
Talking to children and teenagers (Parkinson's UK) Younger People's Groups |
Online resources |
Coronavirus vaccine and Parkinson's (Parkinson's UK) Understanding Coronavirus and Parkinson's (Parkinson's UK) Supporting Patients With Parkinson Disease During COVID-19: James Beck, PhD (Neurology Live, February 2021) Dance for Parkinson's (English National Ballet on YouTube) Coronavirus vaccine and Parkinson's (Parkinson's UK) Parkinson's disease (NHS website) Muscle cramps and dystonia (Parkinson's UK) Physiotherapy works: Parkinson's (Chartered Society of Physiotherapists factsheet) Parkinson's Disease (U.S. National Center for Complementary and Integrative Health) Understanding Parkinson's (U.S. Parkinson's Foundation) ![]() information in Accessible Formats and Other Languages (Parkinson's UK) ![]() |
News and events |
11th April 2021 is World Parkinson's Day |
Our resources |
The library at The Brain Charity has a range of resources on Parkinson's and on a wide range of disability-related issues. For example, visitors to our library can read lots about diet and Parkinson's.
|
Name | Pick's Disease |
see Fronto-temporal Dementia (F.T.D.) |
Name | Pituitary Disorders |
Related to/Also known as | |
Symptoms of Pituitary Disorders |
Disorders of the pituitary gland are relatively rare. The most common problem of the pituitary gland is when a benign tumour develops (a form of pituitary adenoma). Symptoms include headaches and visual problems. |
Types |
Some of the problems related to the pituitary gland are listed below. For more information see the Pituitary Foundation.
|
Useful national contacts |
Pituitary Foundation |
Children & young people |
Advice for parents (Pituitary Foundation) Children (The Pituitary Foundation) ![]() |
Online resources |
Coronavirus Advice (The Pituitary Foundation) COVID Vaccinations (The Pituitary Foundation) ![]() Pituitary disorders (Contact, charity for families with disabled children) Pituitary tumour and driving: you must tell the DVLA if you have a pituitary tumour |
News and Events |
'Diabetes Insipidus - time to change the name?' (Pituitary Foundation, July 2018) |
Our resources | ![]() The library at The Brain Charity has a range of resources on Pituitary Disorders and on a wide range of disability-related issues. This includes copies of the Pituitary Foundation's magazine Pituitary Life. |
Name | Polymyositis |
Related to/Also known as | Myositis |
Symptoms of Polymyositis |
Polymyositis is an inflammatory muscle disease that causes varying degrees of decreased muscle power. The disease has a gradual onset; the most common symptom is muscle weakness. |
Types | Dermatomyositis is a related condition where a particular skin rash occurs, along with muscle inflammation. |
Useful national contacts | Myositis UK![]() Tel: 02380 449708 |
Children & young people | Patients and Parents (Juvenile Dermatomyositis Research Centre)![]() |
Online resources |
Coronavirus and myositis (Myositis UK ) www.myositis.org.uk/myositis-info/coronavirus-and-myositis Coronavirus update from Myositis UK (Myositis UK ) ![]() Myositis (polymyositis and dermatomyositis) (NHS Choices website) ![]() |
Our resources | ![]() The library at The Brain Charity has a range of resources on Polymyositis and on a wide range of disability-related issues. Visit our library to read Teddy-Bo's Feeling Tired: A Story all about living with myositis |
Name | Post-Polio Syndrome |
Related to/Also known as | |
Symptoms of Post-Polio Syndrome |
'Post-polio syndrome' describes a condition where some polio surviviors re-present (on average 30 years after their original illness) with further deterioration in functional ability, increased pain and increased muscle weakness. |
Types | |
Useful national contacts | British Polio Fellowship![]() Tel: 0800 018 0586 |
Children & young people | Polio: What happens next? (Great Ormond Street Hospital for Children)![]() |
Online resources |
Post-polio syndrome (NHS Choices) Covid-19 Vaccination Information (British Polio Fellowship) Polio (NHS Choices) |
News and events | |
Our resources |
The library at The Brain Charity has a range of resources on Post-polio Syndrome and on a wide range of disability-related issues.
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Name | Post-traumatic stress disorder (PTSD) |
Related to |
PTSD may sometimes be caused by Brain Injury, Brain Haemorrhage, Subarachnoid haemorrhage (SAH), or Stroke. See also: Functional neurological disorder |
Symptoms of PTSD |
PTSD is a mental health condition. Mental health conditions are problems with the way you think and feel. Neurological conditions are problems with your brain, spine, or nervous system. Neurological conditions can sometimes lead to mental health problems.
Source: Mind https://tinyurl.com/y8k32fnk/p> |
Types |
|
Useful national contacts |
• The Brain Charity can offer counselling for PTSD PTSD UK PTSD Resolution: charity for UK Forces veterans Combat Stress: UK veterans' mental health charity Mind: the mental health charity Anxiety UK The Samaritans |
Children & young people |
Symptoms of PTSD in children and adolescents (PTSD UK) PTSD (Young Minds charity for children and young people) Children and Trauma (ASSIST Trauma Care) |
Online resources |
Online self-help resources during COVID-19 (Combat Stress) Covid and PTSD: Dispelling misconceptions on those who may have it and why (BBC, February 2021) Coronavirus and your mental health (Mind) Mask anxiety, face coverings and mental health (Mind) Post-traumatic stress disorder (PTSD) (NHS Choices) Emotional effects of brain injury (Headway) National Center for PTSD (U.S. Department for Veterans Affairs) Post-traumatic stress disorder: Management (NICE: National Institute for Health and Care Excellence) OCD and PTSD – and the relationship between the two (PTSD UK) |
News andevents |
Coronavirus: Front-line NHS staff 'at risk of PTSD' (BBC, May 2020)
'My dog saved my life' says PTSD sufferer (BBC, May 2018) |
Our resources | ![]() The library at the Brain Charity has a range of resources on PTSD and on a wide range of disability-related issues. Visit the library to read our copy of the NICE (National Institute for Clinical Excellence) guidlines 'Post-traumatic Stress Disorder (PTSD): the treatment of PTSD in adults and children in adults and children'. |
Name | Prader-Willi Syndrome |
Related to/Also known as | HHHO Syndrome |
Symptoms of Prader-Willi syndrome |
Prader-Willi syndrome is a genetic disorder, which is present from birth. It is characterised by a number of behavioural and psychological features, including low muscle tone, excessive appetite (leading to obesity if not controlled), and immature physical development . Most have borderline or moderate learning difficulties. |
Types | |
Useful national contacts | PWSA-UK (Prader-Willi Syndrome Association)![]() Tel: 01332 365676 |
Children & young people | PWS by age (PWSA-UK)![]() |
Online resources |
![]() |
News and Events | |
Our resources | The library at The Brain Charity has a range of resources on Prader-Willi syndrome and on a wide range of disability-related issues. |
Name | Primary Progressive Aphasia |
see Fronto-temporal Dementia (F.T.D.) |
Name | Progressive Supranuclear Palsy (PSP) |
Related to/Also known as | Steele-Richardson-Olszewski (SRO) Syndrome Corticobasal Degeneration (CBD) |
Symptoms of PSP | PSP is a progressive brain disease, leading to the death of nerve endings (neurons) in the area of the brain controlling balance, vision, movement, speech and swallowing. Symptoms reflect problems in these areas; however, the severity and progression varies considerably from one individual to another. |
Types | |
Useful national contacts | PSPA Helpline: 0300 0110 122 ![]() |
Children & young people | Progressive Supranuclear Palsy (U.S. Child Neurology Foundation)![]() |
Online resources |
PSP & CBD and Coronavirus (PSPA) Progressive Supranuclear Palsy (NHS Choices) Corticobasal degeneration (NHS Choices) |
News and events | |
Our resources | ![]() The library at The Brain Charity has a range of resources on Progressive Supranuclear Palsy and on a wide range of disability-related issues. This includes a copy of the PSPA booklet "An Introduction to PSP and CBD" |