Name Parkinson's
Related to/Also known as Idiopathic Parkinson's Disease
Symptoms of Parkinson's

A progressive neurological condition, which can affect talking, walking, swallowing, writing etc. Characterised by slowness in the initiation and performance of movement, and sometimes tremor, usually at rest.

• The British Deaf Association has information in BSL about Parkinson's.

Useful national contacts

Parkinson's UK
Link opens in new window www.parkinsons.org.uk
Tel: 0808 800 0303
Find a support group near you:
Link opens in new window www.parkinsons.org.uk/content/local-groups
• The Liverpool Central Parkinson's UK Support Group meets at The Brain Charity

Dance for Parkinson's Network UK
Link opens in new windowLink opens in new window www.danceforparkinsonsuk.org

Children & young people

Talking to children and teenagers (Parkinson's UK)
Link opens in new window https://tinyurl.com/y3e3nxge

Younger People's Groups
Tel. 0808 800 0303
Link opens in new window www.parkinsons.org.uk/youngerpeoplesgroups

Online resources

Understanding Coronavirus and Parkinson's (Parkinson's UK)
Link opens in new window www.parkinsons.org.uk/news/understanding-coronavirus-and-parkinsons

Dance for Parkinson's (English National Ballet on YouTube)

Parkinson's disease (NHS website)
Link opens in new window www.nhs.uk/conditions/parkinsons-disease

Muscle cramps and dystonia (Parkinson's UK)
Link opens in new window https://tinyurl.com/y49j24ya

Physiotherapy works: Parkinson's (Chartered Society of Physiotherapists factsheet)
Link opens in new window https://tinyurl.com/nb2bjv8

Parkinson's Disease (U.S. National Center for Complementary and Integrative Health)
Link opens in new window https://nccih.nih.gov/health/parkinson-disease

Understanding Parkinson's (U.S. Parkinson's Foundation)
Link opens in new window www.parkinson.org/understanding-parkinsons
information in Accessible Formats and Other Languages (Parkinson's UK)
Link opens in new window www.parkinsons.org.uk/information-and-support/accessible-formats-and-other-languages
 Living with a condition (The Brain Charity)
News and events

Patient Online Survey: Swallowing difficulties in people with Parkinson's disease (NCEPOD, January 2020)
The survey will lead to a report for healthcare professionals on how they can improve care
Link opens in new window https://tinyurl.com/ujgkytr

Our resources

The library at The Brain Charity has a range of resources on Parkinson's and on a wide range of disability-related issues. For example, visitors to our library can read lots about diet and Parkinson's.

Our Mum has Parkinson's Visit our library to read Our Mum has Parkinson's by Karen Goodall, who was diagnosed with Parkinson's at the age of 32. Or have a look in your local library.