Name Spina Bifida
Related to/Also known as Spinal Dysraphism
Symptoms of Spina Bifida
Spina Bifida (split spine) is a fault in the spinal column, in which one or more of the vertebrae fail to form properly, thereby leaving a gap. It occurs early in pregnancy and is therefore present at birth.

Spina Bifida Occulta is a very mild form, which may only be evident as dimpling of the skin or a hairy patch.

Spina Bifida Cystica is a form where a sac or cyst is visible on the back. If the sac contains nerves and part of the spinal cord, it is known as a Myelomeningocele and will result in some degree of paralysis and disability. If it contains tissue and cerebro-spinal fluid, it is called a Meningocoele and is unlikely to cause disability.

Hydrocephalus is a build-up of C.S.F. (cerebro-spinal fluid) in the brain, and many people with Spina Bifida have Hydrocephalus.
See Hydrocephalus for more information.

Useful national contacts

Link opens in new window www.shinecharity.org.uk
Helpline: 01733 555988

Scottish Spina Bifida Association
Link opens in new window www.ssba.org.uk

Children & young people

Vaccines for children with spina bifida (Shine)
Link opens in new window www.shinecharity.org.uk/advice-for-parents/vaccines

Advice for parents (Shine)
Link opens in new window https://tinyurl.com/y2avzs3d


Preparing for adult life (Contact, charity for families with disabled children)
Link opens in new window https://contact.org.uk/advice-and-support/preparing-for-adult-life

Online resources

Covid 19 (Coronavirus) - Information for Shine Members (Shine)
Link opens in new window www.shinecharity.org.uk/news/news/post/130-coronavirus-information-for-shine-members

Spina bifida (NHS Choices)
Link opens in new window https://tinyurl.com/yd9ehdfa

Spina bifida (Contact, charity for families with disabled children)
Link opens in new window https://tinyurl.com/rzegfpr

 Living with a condition (The Brain Charity)
Our resources

The library at The Brain Charity has a range of resources on Spina Bifida and on a wide range of disability-related issues.