Name Sturge-Weber Syndrome
Related to/Also known as  
Symptoms of Sturge Weber Syndrome

Sturge Weber Syndrome is a rare neurological condition and is not hereditary. To date, there is no medical explanation as to why anyone is born with Sturge Weber.

Sturge Weber Syndrome has many associated problems and symptoms. Sturge Weber is normally (but not always) indicated by a facial port wine stain.

Useful national contacts Sturge Weber UK
Link opens in new window www.sturgeweber.org.uk

Tel: 01392 464675

Children & young people Sturge-Weber syndrome (Contact, charity for people with disabled children)
Online resources Sturge-Weber syndrome (Epilepsy Action)
Link opens in new window https://tinyurl.com/ycdokd45

Sturge-Weber Syndrome Information Page (U.S. National Institute of Neurological Disorders and Stroke website)
Link opens in new window https://tinyurl.com/y9o8hg6h
News and events  
Our resources The library at The Brain Charity has a range of resources on Sturge Weber Syndrome and on a wide range of disability-related issues.