| Name | Tuberous Sclerosis (TSC) |
| Related to/Also known as | Tuberous Sclerosis Complex
Bourneville disease |
| Symptoms of Tuberous Sclerosis |
Tuberous Sclerosis is a complex multi-system disorder, which produces tuber-like growths on the brain. These calcify with age, and can also be found on other organs including the heart, skin and kidneys. It affects people in many different ways and with varying severity. |
| Types | |
| Useful national contacts | Tuberous Sclerosis Association P.O. Box 8001 Derby DE1 0YA  www.tuberous-sclerosis.orgTel: 01332 290734 Find your nearest support group: https://tinyurl.com/y8nl62m9 |
| Children & young people | Early Years (Tuberous Sclerosis Association) www.tuberous-sclerosis.org/early_years.html |
| Online resources | Tuberous Sclerosis (NHS Choices) https://tinyurl.com/yb2wzyut Tuberous Sclerosis Fact Sheet (U.S. National Institute of Neurological Disorders and Stroke) Rare Disease UK(RDUK) is the national alliance for people in the UK with rare diseases RareShare is a unique social forum, building communities for patients, families, and healthcare professionals affected by rare disorders. |
| News and Events | The 100,000 Genomes Project is looking for people with Tuberous Sclerosis for research into their DNA and genes |
| Our resources |
The library at The Brain Charity has a range of resources on Tuberous Sclerosis and on a wide range of disability-related issues.
This includes copies of Turbo & Scott, a graphic novel aimed at teenagers. |
