Name Tuberous Sclerosis (TSC)
Related to/Also known as Tuberous Sclerosis Complex

Bourneville disease

Symptoms of Tuberous Sclerosis
Tuberous Sclerosis is a complex multi-system disorder, which produces tuber-like growths on the brain. These calcify with age, and can also be found on other organs including the heart, skin and kidneys. It affects people in many different ways and with varying severity.
Useful national contacts Tuberous Sclerosis Association
P.O. Box 8001
Derby DE1 0YA
Link opens in new window www.tuberous-sclerosis.org
Tel: 01332 290734
Children & young people Tuberous Sclerosis (for Parents) (KidsHealth)
Link opens in new window https://tinyurl.com/ujs5gyb
Online resources

Coronavirus and TSC: Vaccines information (TSA)
Link opens in new window https://tuberous-sclerosis.org/coronavirus-vaccines-info

Coronavirus - information for people with neurological problems (Brain & Spine Foundation)
Link opens in new window www.brainandspine.org.uk/coronavirus-covid-19


Tuberous Sclerosis (NHS Choices)
Link opens in new window https://tinyurl.com/yb2wzyut

Rare Disease UK(RDUK) is the national alliance for people in the UK with rare diseases
Link opens in new window www.raredisease.org.uk/

RareShare is a unique social forum, building communities for patients, families, and healthcare professionals affected by rare disorders.
Link opens in new window www.rareshare.org


 Living with a condition (The Brain Charity)

News and Events  
Our resources

The library at The Brain Charity has a range of resources on Tuberous Sclerosis and on a wide range of disability-related issues.

Turbo & Scott

This includes copies of Turbo & Scott, a graphic novel aimed at teenagers.