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Olly, a young PhD researcher at Edge Hill University, is investigating the use of ‘digital legacies’ with people affected by MND. This is where people diagnosed with MND record video messages about their life and memories to pass on to children in their family. He would like to speak to people living with MND who are interested in recording a legacy for a child or young person in their family. He would also like to hear from 11-24 year-olds who use a digital legacy for emotional support whilst they provide care for a family member with the disease, and from young people who are bereaved.
For more information, please email This email address is being protected from spambots. You need JavaScript enabled to view it., or have a look at his research page

help digital legacies study