Alexithymia

What is Alexithymia?  

Alexithymia is when a person has difficulty identifying and displaying their emotions. These people can struggle to distinguish between and describe their emotions. Alexithymia is not a diagnosis, and people can be impacted in a various of ways and to various severities.  

What causes Alexithymia? 

The cause of Alexithymia is not known. It affects 1 in 10 people and is more prominent in those with autism, affecting 1 in 5 people who have autism. It can be caused by traumatic events and those who have post-traumatic stress disorder (PTSD). 

Those with Alexithymia still feel all the same emotions as those without it, their difficulties are in communicating that outside of themselves.  

What are the symptoms of Alexithymia? 

Alexithymia can occur in a person with autism. An adult with autism and alexithymia can struggle to report and describe their emotional states to loved ones and healthcare professionals. This can cause feelings of isolation and loneliness. This can further cause difficulties in forming relationships as people living with Alexithymia can find it hard to distinguish the emotions of those around and therefore how to respond to them. Those with Alexithymia might not react in a socially expected way and can lead to feelings of rejection. 

As these people have difficulties in emotional recognition, regulation and communicating emotional states, it makes them an increased risk to being vulnerable to suicide or impulsive behaviours that can be harmful to themselves or others.   

This may all lead to increased anxiety for these people as they feel unable to fit in with those around them. They can be worsened by struggling to self-regulate or talk through the feelings of anxiety as a result of the Alexithymia. 

Are you affected by Alexithymia?

If you’re affected by Alexithymia, The Brain Charity can support you. 

We are the only charity in the Uk to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people. 

We provide practical help on all aspects of living with Alexithymia, emotional support such as counselling and group therapy and social activities to people with brain injuries from all over the UK from our centre in Liverpool.   

We support carers, friends and family too. 

Are you a carer for or relative of someone with Alexithymia? It’s just as important for you to look after your own physical and mental wellbeing too. 

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Alexithymia, from anywhere in the UK. 

We also run additional carer advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.  

Caring for someone affected by Alexithymia?

You don’t need to be a formal or registered carer. We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.  

Looking to talk to someone?

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Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone affected by Alexithymia?

We support carers, friends and family too. 

Are you a carer for or relative of someone with Alexithymia? It’s just as important for you to look after your own physical and mental wellbeing too. 

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including Alexithymia, from anywhere in the UK. 

We also run additional carer advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.  

You don’t need to be a formal or registered carer 

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.  

Other resources

Other resources

The Brain Charity’s Library

The Brain Charity’s library has a range of resources on Aicardi syndrome and on many other disability-related issues. Search the catalogue online here. 

Support groups at The Brain Charity

Are you interested in setting up a Alexithymia support group, or do you already run one? Email info@thebraincharity.org.uk to let us know. 

Alternatively, you can check out our list of related support groups here