Colloid cyst

neuroepithelial cyst

What is a colloid cyst?

A colloid cyst is a rare, benign (non-cancerous) growth that forms in the brain and can potentially cause serious complications if left untreated.

Colloid cysts are filled with a jelly-like fluid called colloid, which can range from a watery fluid to an almost solid consistency.

What causes colloid cysts?

The exact cause of colloid cysts remains unclear, but they are thought to develop from remnants of embryonic tissue left behind during early brain development. These remnants become trapped in the brain’s third ventricle, leading to the formation of the cyst.

The gel-like material inside the cyst is believed to be made up of proteins, cellular debris, and other substances. This is all enclosed within a thin, capsule-like wall.

Colloid cysts are not hereditary and there are no known lifestyle or environmental factors that contribute to their formation.

What are the symptoms of a colloid cyst?

Colloid cysts don’t always cause problems, but if they get big enough they can cause a range of symptoms:

  • Headaches (often sudden onset and positional, worsening when lying down)
  • Nausea and vomiting
  • Memory issues or confusion
  • Dizziness or balance issues
  • Blurred or double vision
  • Seizures (rare but possible in some cases).

A colloid cyst can sometimes cause a life-threatening condition known as acute hydrocephalus (fluid build-up in the brain).

Seek urgent medical help if someone experiences:

  • A sudden, severe headache.
  • Unexplained loss of consciousness.
  • Persistent vomiting or confusion.

Treatment depends on the size of the cyst and the severity of symptoms and may include monitoring, surgical removal, or aspiration of the cyst contents to relieve pressure and restore normal cerebrospinal fluid flow.

Although colloid cysts are very uncommon, if you or a loved one are experiencing two or more of the symptoms listed above it’s important that you see your GP for referral to a neurologist or neurosurgeon familiar with the condition.

Are you affected by colloid cyst?

If you’re affected by a colloid cyst, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of the more than 600 different neurological conditions in existence. Individually, many are rare, but combined, they affect 1 in 6 people.

We provide practical help on all aspects of living with colloid cysts, emotional support such as counselling and group therapy and social activities to people with a colloid cyst and their family, friends and carers from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with a colloid cyst

We support carers, friends and family too

Are you a carer for or relative of someone with a colloid cyst? It’s just as important for you to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including colloid cyst, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which type of condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance. Find out some of the ways we support carers below.

Other resources

Support groups

Support groups around the UK

The Brain Tumour Charity maintains a list of local support groups which meet throughout the UK.

Read this list of local brain tumour support groups here.

Support group at The Brain Charity

The Liverpool Brain Tumour Support Group is open to patients, their carers and family members.

Meetings are held at The Brain Charity on the final Monday of each month (excluding bank holidays) and aim to provide an open forum where people can talk freely about their experiences.

Call our reception for details of the next meeting: 0151 298 2999

Online brain tumour support groups

The Brain Tumour Charity’s brain tumour support groups offer a safe online space where you can connect with others who know what you’re going through.

Click here to find an online support group today.

Other charities

The Brain Tumour Charity

Brain Tumour Action

Brainstrust

Brain Tumour Support