Progressive supranuclear palsy (PSP)

Steele-Richardson-Olszewski syndrome, corticobasal degeneration

What is progressive supranuclear palsy?

Progressive supranuclear palsy (PSP) is a rare progressive neurological disorder that can affect coordination, vision, speech and the ability to swallow.

What causes PSP?

The exact cause of progressive supranuclear palsy (PSP) is not fully understood, but it is linked to the abnormal accumulation of a naturally occurring protein called tau in the brain.

Tau is usually broken down within the body, but for those with PSP, this does not happen.

Too much tau in the brain can gradually harm brain tissue, resulting in degeneration of our bodily functions.

What are the symptoms of PSP?

Progressive supranuclear palsy is a progressive condition where symptoms worsen over time, which include:

  • Problems with balance and mobility, with difficulty moving and coordinating the limbs
  • Changes to vision, including blurred vision and difficulty controlling the muscles around the eye
  • Loss of ability to speak clearly, speech may be slurred and the patient may struggle to find the correct words
  • Difficulty swallowing
  • Behavioural changes, including mood swings and low mood.

There is currently no cure for PSP. Treatment focuses on managing symptoms and improving quality of life through medications, physiotherapy, and other supportive therapies.

Are you affected by PSP?

If you’re affected by PSP, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of over 600 neurological conditions. Individually, they are rare, but they affect 1 in 6 people, combined. We provide practical help on all aspects of living with PSP, from emotional support such as counselling, phone befriending and group therapy, to social activities to help people with brain injuries from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with PSP

We support carers, friends, and family too.

Are you a carer for, or a relative of someone who has PSP? It’s important for you to look after your mental and physical wellbeing too.

The Brain Charity provides free support for carers, friends and family with any form of neurological condition, including PSP, from anywhere in the UK.

We also run an additional carer advocacy service for all carers in Liverpool, regardless of what type of condition the person they care for has.

You don’t need to be a formal or registered carer.

We can help you, even if you don’t view yourself as a formal carer, or claim Carer’s Allowance.

Find out some of the ways we help carers below.

Other resources

The Brain Charity's library

The Brain Charity's library has a number of resources on PSP and many other related neurological conditions

Visit our library to read:

  • Progressive supranuclear palsy, by NHS Choices
  • Progressive supranuclear palsy: Your personal guide, by PSP Association
  • A guide for living with progressive supranuclear palsy and corticobasal degeneration, by PSP Association

Or search the online catalogue here.

Support groups

PSPA

PSPA run 30 support groups, divided by area of the UK.

Website: www.pspassociation.org.uk

Phone: 0300 0110122

Email: info@pspassociation.org.uk

 

Facebook support group

A large international group, providing support and information for those living with PSP.

Website: www.facebook.com/progressivesupranuclearpalsy

Support groups by Cure PSP

An international charity providing online support on many issues caused by living with PSP.

Online Support Groups

 

Other charities

Cure PSP

An international charity dealing with all matters related to PSP.

Website: www.curepsp.org

Email: info@curepsp.org

PSP Association