Psychogenic non-epileptic seizures

PNES

What are psychogenic non-epileptic seizures (PNES)?

PNES is part of a group of conditions called functional neurological disorders. These conditions arise from the way the brain processes information, rather than from disease.

PNES are epileptic-like seizures that are caused by psychological distress, rather than electrical activity in the brain.

What causes PNES?

PNES is thought to be a physical response to a combination of psychological and physical stressors.

  • Psychological factors, such as suffering abuse or PTSD, anxiety or stress, combined with an inability to cope with these difficult experiences. This is the primary cause of PNES.
  • Physical factors, such as a head injury, migraine or chronic pain. Other conditions such as heart disease and diabetes are also found in patients with PNES.
  • Environmental factors, such as family conflict, addiction, or traumatic life events, may increase the likelihood of stress disorders.

What are the  symptoms of PNES?

A PNES seizure will present the same symptoms as an epileptic seizure, these include:

  • A change in consciousness, varying from a brief moment of brain fog, to a complete loss of consciousness
  • Involuntary limb movements, ranging from short term paralysis to intense thrashing and jerking
  • Changes to the voice, causing a range of noises and unrecognisable words, or even complete silence
  • Loss of bladder control
  • Tongue biting

Seizures can have any combination of the above and will vary from a minor daze to a full on unconscious episode.

Are you affected by PNES?

If you’re affected by PNES, The Brain Charity can support you.

We are the only charity in the UK to be here for every one of more than 600 neurological conditions. Individually, many are rare, but combined they affect 1 in 6 people.

We provide practical help on all aspects of living with PNES, emotional support, such as counselling, phone befriending and group therapy and social activities to people with PNES from all over the UK from our centre in Liverpool.

Looking to talk to someone?

Woman smiling, making eye contact and holding the hand of another woman to comfort her

Phone us

Contact The Brain Charity now

Our friendly Information & Advice Officers are here to help. We endeavour to respond to all enquiries within 10 working days.

0151 298 2999

Looking to talk to someone?

  • Please tell us which neurological condition you are affected by and what you need support with.

Caring for someone with PNES

We support carers, friends and family too

Are you a carer for, or relative of someone with P PNES? It’s just as important to look after your own physical and mental wellbeing too.

The Brain Charity provides free support for carers, friends and family of people with any form of neurological condition, including PNES, from anywhere in the UK.

We also run an additional carers advocacy service for all carers in Liverpool, regardless of which condition the person they care for has.

You don’t need to be a formal or registered carer

We can help you even if you don’t view yourself as a formal carer or claim Carer’s Allowance.

Find out some of the ways we support carers below.

Other resources

The Brain Charity's library

The Brain Charity's library has information on PNES, as well as many other disability related issues

Visit our library to read:

Or search our library catalogue online,
here.

Support groups

PNES Warriors

Click here for a Facebook community for those with experience of PNES.

FND Action

Click here for a list of support groups run by FND Action.

Support groups at The Brain Charity

Epilepsy Action will soon be running a support group at our centre in Liverpool. Email activities@thebraincharity.org.uk to find out more.

Alternatively, click here for a list of our current support groups.

Other Charities

Epilepsy Action