Name Creutzfeldt-Jakob Disease (CJD)
Related to/Also known as  
Symptoms of CJD
CJD is a rare, untreatable, fatal illness affecting the brain. It is one type of the group of transmissible spongiform encephalopathies (TSEs). CJD is divided into four different forms, which all have different causes and symptoms, but they all have the same basic disease process of the accumulation of abnormal prion protein in the brain tissue:
  • Sporadic CJD, of unknown cause and occurs mainly in the middle-aged and elderly.
  • Genetic CJD, very rare and due to an inherited genetic defect.
  • Iatrogenic CJD, results from accidental transmission by medical or surgical equipment.
  • Variant CJD (vCJD) - a new form of the disease, which has emerged in recent years, linked to a prion disease which affects cattle, bovine spongiform encephalopathy, or BSE. Variant CJD appears to affect younger people.
Useful national contacts CJD Support Network
Link opens in new window www.cjdsupport.net
Tel: 01630 673973

National CJD Surveillance Unit
Link opens in new window www.cjd.ed.ac.uk
Tel: 0131 537 2128

National Prion Clinic
Tel. 020 3448 4037/4038
Link opens in new window www.nationalprionclinic.org
Children & young people Creutzfeldt-Jakob disease facts for kids (Kpedia)
Link opens in new window https://kids.kiddle.co/Creutzfeldt-Jakob_disease
News and events  
Online resources Creutzfeldt-Jakob Disease (NHS Choices website)
Link opens in new window https://tinyurl.com/ybwmkkvj

Creutzfeldt-Jakob Disease Information Page (U.S. National Institute of Neurological Disorders and Stroke website)
Link opens in new window https://tinyurl.com/y99mbozu

Notification and support for people exposed to the risk of Creutzfeldt-Jakob disease (CJD) (or other prion diseases) through medical treatment (Cochrane website)
Link opens in new window https://tinyurl.com/yc8r4cuu


 Living with a condition (The Brain Charity)

Our resources

The library at The Brain Charity has a range of resources on Creutzfeldt-Jakob Disease (CJD) and on a wide range of disability-related issues.