|Related to/Also known as|
|Symptoms of Dystonia
||Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.|
The Dystonias can be defined in terms of which body parts are involved.
Primary focal dystonia are the most common including:
|Useful national contacts||The Dystonia Society
Helpline: 0845 458 6322
Find your local support group:
• The Liverpool & Merseyside Support Group meets at The Brain Charity
|Children & young people||Children and dystonia (The Dystonia Society)
|Online resources||Dystonia (NHS website)
Dystonia and Parkinson's disease (Dystonia Society)
|News and events||
The 100,000 Genomes Project is looking for people with Dystonia for research into their DNA and genes
Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
The library at The Brain Charity has a range of resources on Dystonia and on a wide range of disability-related issues.
This includes the book for children and young people Medikidz Explain Dystonia Management.