D
Name  Dystonia
Related to/Also known as  
Symptoms of Dystonia
Dystonia is a disorder which causes muscles in the body to contract and spasm involuntarily. Spasms may affect one part of the body or many parts simultaneously and can be very painful.
Types

The Dystonias can be defined in terms of which body parts are involved.

  • Focal - affects one part
  • Segmental - 2 or more adjacent body parts
  • Multifocal - 2 or more non-adjacent parts
  • Generalised

Primary focal dystonia are the most common including:

  • Cervical dystonia (or spasmodic torticollis) affects the neck muscles.
  • Blepharospasm affects the muscles of the eyelids.
  • Hand dystonia/writer's cramp affects the hand and finger muscles
  • Laryngeal dystonia (or spasmodic dysphonia) affects the vocal chords.
  • Oromandibular dystonia affects the muscles in the jaw, mouth and tongue.
Useful national contacts The Dystonia Society
Helpline: 0845 458 6322
Link opens in new window www.dystonia.org.uk
Find your local support group:
https://tinyurl.com/y2ga7azz
• The Liverpool & Merseyside Support Group meets at The Brain Charity
Children & young people Children and dystonia (The Dystonia Society)
Link opens in new window https://www.dystonia.org.uk/children-and-dystonia
Online resources Dystonia (NHS website)
Link opens in new window www.nhs.uk/conditions/dystonia
Dystonia and Parkinson's disease (Dystonia Society)
Link opens in new window https://tinyurl.com/yyo2pot8
News and events

The 100,000 Genomes Project is looking for people with Dystonia for research into their DNA and genes
Link opens in new window www.genomicsengland.co.uk/taking-part

Sign Joanne's petition: Dystonia needs to be recognised by all medical professions & occupational therapists
Link opens in new window https://tinyurl.com/y9y6d6pv

Our resources

Medikidz Explain Dystonia ManagementThe library at The Brain Charity has a range of resources on Dystonia and on a wide range of disability-related issues.

This includes the book for children and young people Medikidz Explain Dystonia Management.