M
Name Motor Neurone Disease (MND)
Related to/Also known as Motor Neuron Disease
Amyotrophic Lateral Sclerosis (ALS)
Symptoms of Motor Neurone Disease
Motor Neurone Disease is an uncommon disease, which causes a progressive degeneration of the motor system (the nerve cells that controls the muscles). It is a slowly progressive disease, whose common systems include muscle wasting/weakness, muscle cramps and difficulty with swallowing and with speech.
Types
  • Progressive Muscular Atrophy (PMA)
  • Progressive Bulbar Palsy
  • Primary Lateral Sclerosis
  • Familial MND (Familial ALS/FALS)
  • Juvenile ALS (MND)
Useful national contacts  Motor Neurone Disease Assocation (MNDA)
Link opens in new window www.mndassociation.org
Helpline: 08457 626262 (local rate)
Find your local branch
Link opens in new window https://tinyurl.com/pxzujdo
• The Liverpool MND Support Group meets at The Brain Charity
Children & young people 

Children and young people (MNDA)
Info if you are aged up to 18 and you know someone with Motor Neurone Disease.
There is also information for parents and guardians
Link opens in new window https://tinyurl.com/y3p2reek

Online resources

Motor neurone disease (NHS Choices)
Link opens in new window https://tinyurl.com/ptmc38p


Motor neurone disease (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/c4jpfbn


Motor neurone disease (Brain Research UK)
Link opens in new window https://tinyurl.com/ybodkg52

 

News and events The 100,000 Genomes Project is looking for people with Motor Neurone Disease for research into their DNA and genes

Link opens in new window www.genomicsengland.co.uk/taking-part

Trajectories of Outcome in Neurological Conditions (TONiC) study seeks volunteers
Link opens in new window https://tonic.thewaltoncentre.nhs.uk

Our resources When Someone Close has MND: A workbook for children aged 4 to 10

The library at The Brain Charity has a range of resources on Motor Neurone Disease and on a wide range of disability-related issues.

This includes a copy of the MNDA's booklet 'When Someone Close has MND: A workbook for children aged 4 to 10'.