Name Motor Neurone Disease (MND)
Related to/Also known as Motor Neuron Disease
Amyotrophic Lateral Sclerosis (ALS)
Symptoms of Motor Neurone Disease
Motor Neurone Disease is an uncommon disease, which causes a progressive degeneration of the motor system (the nerve cells that controls the muscles). It is a slowly progressive disease, whose common systems include muscle wasting/weakness, muscle cramps and difficulty with swallowing and with speech.
Types Progressive Muscular Atrophy (PMA)

Progressive Bulbar Palsy
Primary Lateral Sclerosis
Familial MND (Familial ALS/FALS)
Juvenile ALS (MND)

Useful national contacts Motor Neurone Disease Assocation
Link opens in new window www.mndassociation.org
Helpline: 08457 626262 (local rate)
Find your local branch
Link opens in new window https://tinyurl.com/pxzujdo
Online resources

How can I check if my treatment and care are appropriate? (MND Association and NICE guidelines)
Link opens in new window https://tinyurl.com/ydchxhxx

Motor neurone disease (NHS Choices)
Link opens in new window https://tinyurl.com/ptmc38p

Motor neurone disease (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/c4jpfbn

Motor neurone disease (Brain Research UK)
Link opens in new window https://tinyurl.com/ybodkg52


News and events


The 100,000 Genomes Project is looking for people with Motor Neurone Disease for research into their DNA and genes

Link opens in new window www.genomicsengland.co.uk/taking-part

Trajectories of Outcome in Neurological Conditions (TONiC) study seeks volunteers
Link opens in new window https://tonic.thewaltoncentre.nhs.uk

Our resources

The library at The Brain Charity has a range of resources on Motor Neurone Disease and on a wide range of disability-related issues.