M
Name Motor Neurone Disease (MND)
Related to/Also known as Motor Neuron Disease
Amyotrophic Lateral Sclerosis (ALS)
Symptoms of Motor Neurone Disease

Motor Neurone Disease is an uncommon disease, which causes a progressive degeneration of the motor system (the nerve cells that controls the muscles). It is a slowly progressive disease, whose common systems include muscle wasting/weakness, muscle cramps and difficulty with swallowing and with speech.

• The British Deaf Association has information in BSL about Motor Neurone Disease.

Types
  • Progressive Muscular Atrophy (PMA)
  • Progressive Bulbar Palsy
  • Primary Lateral Sclerosis
  • Familial MND (Familial ALS/FALS)
  • Juvenile ALS (MND)
Useful national contacts 

Motor Neurone Disease Assocation (MNDA)
Link opens in new window www.mndassociation.org
Helpline: 08457 626262 (local rate)
Find your local branch
Link opens in new window https://tinyurl.com/pxzujdo


MND Scotland
www.mndscotland.org.uk
Tel: 0141 332 3903
Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

Children & young people 

Children and young people (MNDA)
Info if you are aged up to 18 and you know someone with Motor Neurone Disease.
There is also information for parents and guardians
Link opens in new window https://tinyurl.com/y3p2reek

Online resources

Coronavirus information (MNDA)
Link opens in new window www.mndassociation.org/about-mnd/coronavirus-and-mnd/mnd-and-coronavirus-2

MND and Coronavirus (MNDA)
Link opens in new window www.mndassociation.org/mnd-and-coronavirus


Motor neurone disease (NHS Choices)
Link opens in new window https://tinyurl.com/ptmc38p


Motor neurone disease (Brain & Spine Foundation)
Link opens in new window https://tinyurl.com/c4jpfbn


 Living with a condition (The Brain Charity)
News and events

Global MND Awareness Day is 21 June 2020 (International Association of ALS/MND Associations)
Link opens in new window www.alsmndalliance.org/global-day
 

Motor neurone disease trial offered to hundreds of patients (BBC, January 2020)
Link opens in new window https://tinyurl.com/ttna4ey

Trajectories of Outcome in Neurological Conditions (TONiC) study seeks volunteers
Link opens in new window https://tonic.thewaltoncentre.nhs.uk

Our resources When Someone Close has MND: A workbook for children aged 4 to 10

The library at The Brain Charity has a range of resources on Motor Neurone Disease and on a wide range of disability-related issues.

This includes a copy of the MNDA's booklet 'When Someone Close has MND: A workbook for children aged 4 to 10'.