Real life stories

Boy, Freddie, with Grandad Phil.

Freddie’s Kabuki syndrome story: “The respite we received from The Brain Charity was invaluable”

Explore the impact of Kabuki syndrome through the story of Rachel, Phil, and their grandson

Published: 24 March 2025

Ste a service user with cerebral palsy sits talking with Scot at a table

Ste’s cerebral palsy story: “When someone said, ‘he won’t do it,’ my attitude was, ‘watch me do it.’”

Explore the personal triumphs and challenges of Ste's life with cerebral palsy.

Published: 27 February 2025

A woman in a wheelchair teaches a class around understanding neurodivergence

Snoof’s neurodivergence story: “The Brain Charity gave me the chance to help others feel okay being themselves” 

Follow Snoof's journey to learn about the challenges and self-discovery of being neurodivergent.

Category: Info & advice

Published: 27 February 2025

Man (Chris), reciepient of our Confidence coahcing, holding up The Brain Charity logo.

Chris’ Story: “Confidence coaching helped me combat my hesitation and anxiety.” 

Discover how ADHD can affect confidence and self-application in work. Learn from Chris Hawkins' experience.

Category: Employment

Published: 13 February 2025

Christine, a middle-aged woman in a cardigan, on a visit to The Brain Charity

Christine’s HPX story: “It took 34 years for my rare condition to be diagnosed”  

Mum-of-two Christine went her whole life not understanding why she felt different due to hereditary

Category: Welfare benefits

Published: 13 January 2025

Jacob with his mum and dad.

Jacob’s UBE2A story: “Success at tribunal helped us buy our son’s medical equipment” 

Jacob's mum said the lack of awareness around his rare condition is the hardest thing.

Category: Help for carers

Published: 27 August 2024

A young man in black T-shirt stands in front of an exterior wall made from wooden cladding.

Louis’ Neurofibromatosis 1 story: “The Brain Charity has really helped me get in a better place”

The 26-year-old says the charity’s counselling sessions helped him realise he’s not on his own.

Category: Counselling

Published: 24 January 2024

Photo of John wearing a grey shirt and a Union Jack bow tie. He's seated and holding his hand to his ear to be able to be able to hear better.

John’s story: “The Brain Charity’s Music Makes Us! sessions gave my 96-year-old dad a complete new lease of life”

Hoylake Cottage resident John found our physiotherapy through dance gave him a sense of purpose.

Category: Dementia support

Published: 21 June 2023

Rupak getting advice at The Brain Charity in Liverpool

Rupak’s MS story: “I was homeless after my diagnosis – The Brain Charity finding me a home was irreplaceable”

The Brain Charity's staff helped Rupak find somewhere to live so he could spend time

Category: Info & advice

Published: 8 November 2022

Kamani and her husband

Kamani’s functional neurological disorder story: “Applying for PIP left me feeling anxious and helpless – the Brain Charity helped me change my life”

Kamani was left without financial support after her PIP application was rejected.

Category: Welfare benefits

Published: 20 June 2022