Real life stories
Real life stories
Freddie’s Kabuki syndrome story: “The respite we received from The Brain Charity was invaluable”
Explore the impact of Kabuki syndrome through the story of Rachel, Phil, and their grandson
Published: 24 March 2025
Ste’s cerebral palsy story: “When someone said, ‘he won’t do it,’ my attitude was, ‘watch me do it.’”
Explore the personal triumphs and challenges of Ste's life with cerebral palsy.
Published: 27 February 2025
Snoof’s neurodivergence story: “The Brain Charity gave me the chance to help others feel okay being themselves”
Follow Snoof's journey to learn about the challenges and self-discovery of being neurodivergent.
Category: Info & advice
Published: 27 February 2025
Chris’ Story: “Confidence coaching helped me combat my hesitation and anxiety.”
Discover how ADHD can affect confidence and self-application in work. Learn from Chris Hawkins' experience.
Category: Employment
Published: 13 February 2025
Christine’s HPX story: “It took 34 years for my rare condition to be diagnosed”
Mum-of-two Christine went her whole life not understanding why she felt different due to hereditary
Category: Welfare benefits
Published: 13 January 2025
Jacob’s UBE2A story: “Success at tribunal helped us buy our son’s medical equipment”
Jacob's mum said the lack of awareness around his rare condition is the hardest thing.
Category: Help for carers
Published: 27 August 2024
Louis’ Neurofibromatosis 1 story: “The Brain Charity has really helped me get in a better place”
The 26-year-old says the charity’s counselling sessions helped him realise he’s not on his own.
Category: Counselling
Published: 24 January 2024
John’s story: “The Brain Charity’s Music Makes Us! sessions gave my 96-year-old dad a complete new lease of life”
Hoylake Cottage resident John found our physiotherapy through dance gave him a sense of purpose.
Category: Dementia support
Published: 21 June 2023
Rupak’s MS story: “I was homeless after my diagnosis – The Brain Charity finding me a home was irreplaceable”
The Brain Charity's staff helped Rupak find somewhere to live so he could spend time
Category: Info & advice
Published: 8 November 2022
Kamani’s functional neurological disorder story: “Applying for PIP left me feeling anxious and helpless – the Brain Charity helped me change my life”
Kamani was left without financial support after her PIP application was rejected.
Category: Welfare benefits
Published: 20 June 2022