Real life stories
Real life stories
Donna’s story: “My granddaughter was born with a rare brain condition – The Brain Charity’s help was invaluable”
The diagnosis was a huge shock - The Brain Charity provided vital information.
Category: Help for carers
Published: 2 February 2022
Jacob’s UBE2A story: “Success at tribunal helped us buy our son’s medical equipment”
Jacob's mum said the lack of awareness around his rare condition is the hardest thing.
Category: Help for carers
Published: 27 August 2024
Freddie’s Kabuki syndrome story: “The respite we received from The Brain Charity was invaluable”
Explore the impact of Kabuki syndrome through the story of Rachel, Phil and their grandson.
Category: Help for carers
Published: 24 March 2025
William’s Down’s syndrome story: “We feel so lucky we discovered The Brain Changer Arts Project during the COVID-19 lockdowns”
Our art and occupational therapy sessions helped William keep practicing his fine motor skills during
Category: Help for carers
Published: 11 May 2022
Hazel’s dementia story: “Dementia took away my husband’s ability to speak; Music Makes Us! helped us reconnect”
Robert, 92, was diagnosed with vascular dementia with Lewy bodies in December 2018.
Category: Help for carers
Published: 12 July 2021
Rose’s posterior fossa syndrome story: “She was paralysed after tumour op; art helped her hold scissors again”
The youngster had to learn to walk again - Brain Changer craft sessions proved vital.
Category: Help for carers
Published: 7 October 2021
Ian’s brain injury story: “I forgot my wife and kids after I was brutally attacked by a stranger on Christmas Eve”
The dad-of-three was punched to the floor and hit his head on the kerb.
Category: Help for carers
Published: 15 March 2021
Marie’s brain tumour story: “I said goodbye to my newborn daughter and had to learn to walk again”
The new mum found out she had a golf ball-sized meningioma after giving birth.
Category: Help for carers
Published: 22 March 2021
Blossom’s dyspraxia story: “She was falling behind – now she can celebrate her neurodiversity”
The 10-year-old has joint hypermobility syndrome and dyspraxia, which affects fine and gross motor skills.
Category: Help for carers
Published: 15 March 2021
Faith’s Chiari malformation story: “The Brain Changer Arts Project helps her love the physio she needs”
The 8-year-old has Chiari malformation, meaning her brain is pushing into her spinal canal.
Category: Help for carers
Published: 15 March 2021
